There is always a light bright light at the end of the tunnel. 10 Year old Williow has spent the past several years of his life shining the light on his ailment with a smile on his face. He is one in a Million!
United Nations World Sickle Cell Day 2019 put together by Professor Ifeoma Modebe in Collaboration with Louis Love Nest Foundation, Hazel Oils & City Radio 89.7. Prof Ifeoma Modebe will be Celebrating Anambra Law Makers on the Historic Passage of Sickle Cell Law. 
Culled from PHILADELPHIA (KYW Newsradio) — World Sickle Cell Awareness Day is June 19 and a Montgomery County pre-teen is hoping to inspire others to learn more about the disorder.

Isaiah Huff has spent the past several years of his life shining the light on sickle cell anemia.

“I hope people see, like, what we go through,” he said.

Those who have the genetic blood cell disorder have red blood cells shaped like a sickle or the letter “c,” which can cause major complications including pain.  Huff was in the hospital a couple of weeks ago and explains what it feels like to be in sickle cell crisis.

“It feels like a drum is pounding on me,” he said, “or someone is squeezing like, if it was my arm, squeezing really, really tight,” he said.

Huff has experienced dozens of trips to the hospital in his life, yet the future actor loves to play outside and is thriving, despite making adjustments to avoid crisis triggers for the disorder. “I have a weather limit,” he said, “if it’s below 55 degrees, I wouldn’t be able to go out. I just stay inside and play board games with my friends.” But Huff is resilient and always had a deep desire to help others.

ACTION POINTS 

He started a club he calls Isaiah Inspires, where he and his mother Shanna Huff take toys and books to kids hospitalized with sickle cell. He also hosts blood drives, writes books and designs “Sickle Strong” T-shirts that he sells online.

On June 19, he’ll hold an evening event in Willow Grove at 8 p.m. where attendees will wear red and hold flashlights shining a light on the blood disorder.

“We just want them to spread the word about sickle cell,” he said!

PASSION

DAME: Over the years I have lost at least two of my close friends to Sickle Cell Anaemia Ugochinyere Onyewenyi Von/Unssec And Ebuka CMF Sweet Souls amazing people?Gone too soon by no fault of theirs. Enough! Let sensitization take place NOW! No more loss! Your love union shouldn’t cause others pain! STAY WOKE!

@unitednations Says Be aware and informed! Know your Blood groups, genotypes and everything else. United Nations World Sickle Cell Day June 19th is put together by Super Professor Ifeoma Modebe ?& Sir Sam Modebe Proudly sponsored by @ssmfoundation @louislovenestfoundation @hazel_oils in Collaboration with Primavera International School & @cityradio89.7fm

On Wednesday, We will be conviening in Anambra State, Nigeria to raise awareness for sickle cell anaemia. Join us let’s spread hope, love & truth!